15 months post transplant...Evan is 27 months old!

This picture perfectly represents where we are today! Evan is a 27 month old picky toddler! He has tried and true foods he will typically eat (pizza has newly been added to that list). This picture was taken after a great morning at the pool where Evan played, "swam", and enjoyed life while we sat back and watched. We would not be where we are today if it weren't for Evan's donor family and his new liver!

Speaking of his new liver, it is working beautifully! We recently had to tweak his prograf a tiny bit, but his liver is happy as is he! We spend our days going to the library, swimming at the pool, playing at the park, exploring the local museums, bowling, or making friends. We are LIVING and LOVING life! :)

MSUD seems like such a distant memory in so many ways, but it will never be forgotten. We still promote awareness and support other families effected by this nasty disease.What's wonderful, though, is that it no longer controls our life. Yes, the transplant was trading one issue for another, but for us liver transplant has been a great option. We are still cautious and have to monitor Evan's liver levels closely, but day to day our life is amazing!

If you are finding this page as a new family effected by MSUD, please know that there is hope.