Going home!

We received great news today! Evan's virus is either down to very little or zero (the test wasn't conclusive so they will run it again). Either way, we are heading home on Sunday! The team determined that Evan is well enough to go home and that if he needs anymore treatment it can be handled in NM! We are so thrilled to be going home. We now have so much to do to pack and get everything back. We stopped by the Ronald McDonald House today to say farewell to a few of the people we met as well as give them some of the food we won't get to eat since we are leaving. We also donated some of the feeding tube medical supplies we had received and are no longer using.

Almost home....

Evan's biopsy did end up indicating mild rejection. The docs increased his prograf and his numbers have been normalizing ever since. He is continuing to do well. As of yesterday, the doctors are planning to send us home as soon as Evan's adenovirus levels hit zero...which may be now. We are waiting on the results of his blood tests taken Wednesday evening. Hopefully we will have them in the next couple of hours so we can determine what our plan will be to get home. If the results are not at zero yet then we will continue with Cidofivir treatments tomorrow and again Tuesday and hopefully head home by the middle of the week. Either way, we are almost home!

We were able to get a little sightseeing in this past week. On Saturday we went to a park called Happy Hollow. There was a zoo and a small park. Evan got to ride on the dragon train. He loved it! :) On Wednesday we went to the Monterey Bay Aquarium. We had an awesome time! Evan really loved the penguins! A couple of them would swim up close to the glass and interact with the kids. There was also a really fun toddler area where Evan got to play with some plastic fish in the water and some other fun things. He also got to try some new foods. He ate bread and butter, french fries, and even a few bites of my fish at lunch. Oh...and he doesn't have an NG tube anymore! He has been eating pretty well without it. He doesn't like milk, but he does like chocolate milk! He also does well with his pureed baby food. He still struggles with thicker foods and chunks, but we are working on that and he is getting a little better each day. This is probably a result of the fighting him to eat for so long. We will get through this..and if it's one of the biggest obstacles we have left, that's okay by us!

I will update when I know of our return date home! Thanks for the continued prayers. Evan is doing great!