Evan in park

Evan in park

Wednesday, January 18, 2012

Getting ready...

It's been a crazy week since family left. We have been getting things in order so that when we get "the call" we aren't scrambling to make sure things are taken care of. Bags are almost packed and directions have been given to those who will watch the house and the dog. Sadly...we still don't know which company has been contracted for our transportation. We know it's been approved, but we don't know who it's going to be which makes it difficult to figure out if we are all traveling together or if one parent will have to travel commercially (We are PRAYING that is not the case).

Evan had more labs drawn on Monday and along with that his current weight (8.97 kilo) and height (72.7 cm) have been sent of to Stanford so that his transplant list status can be moved up to 1B this Friday. I can't believe it's been almost a month since Evan was placed on the list for a new liver. Man, the time sure does fly! We are hoping the call won't come too long after the status change. The wait is going to be killer!

We had a tiny glimpse into what it will feel like the moment we get "the call". On Monday morning at 2:45 am our home phone rang. Of course it woke us out of  deep sleep and I jumped when my brain thought of Evan and his transplant. I kept thinking we weren't ready because he's not supposed to be eligible yet because of his immunizations. Once I answered the phone and realized who it was I relaxed for a moment. It was JR's work calling because they had a real world mission and needed him to go into work. An autistic teen had gone missing while hiking with family in White Sands NM.  He had been missing for more than 12 hours at this point and ground and air searches had been unsuccessful to that point. By the time Gary's crew had arrived the teen had been missing for several hours longer. However, an hour and a half into their search, they spotted the boy, who was in remarkably good shape. He was carrying a red sled (for sand sledding on the dunes). That is how they saw him.  Because the boy was in such good shape, they were able to return him to his mother rather than take him to the local hospital.

Here is a picture of the rescue crew and Angelo (the teen they rescued) 
I am so proud of my husband and his crew for a job well done!

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