Evan is ON the transplant list! We got the call a couple of hours ago! I am still so amazed at how quickly this process is going! As I believe I have posted previously, Evan will be listed with a score of 30 out of 40 for the first 30 days. Once he has been on the list for 30 days, he will be bumped up to a Status 1B which is the 2nd highest status for a pediatric transplant patient. Once he is on status 1B we will hopefully get "The Call" fairly quickly. The transplant team seems quite confident that it will not be a long wait. The longest they have waited for another child was 6 months, but usually they transplant within 4 months of listing.
So far so good! We are so blessed to have had such a smooth road so far. As much as I feel blessed, I am waiting for the other shoe to fall. I worry that we will hit some snag or something will change.
But for today, for right now at least, I feel so positive! Thank you again to all of you for your continued support! The REAL wait has officially begun!
Teddi and JR - thanks for sharing update on your gorgeous boy, Evan. Thoughts and prayers going out to you. May this be a joyous and healthy Christmas. Barb and Terry
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