Evan was unhooked today! They took off his EKG monitor and his pulse monitor. They also removed his oxygen. He is now only attached with his feeding tube and that only runs every two hours! His feeding tube has now been pulled back from his intestines and is back in his stomach. We are feeding him every two hours by bottle and whatever he doesn't take by bottle is fed through his feeding tube in a 30 minute bolus. Feeding this way essentially mimics a natural digestive process and gives him a chance to get hungry. He is doing okay and has taken at least a little bit at each feeding by bottle. Hopefully we make more headway with the bottle feeding tomorrow. The sooner we are on only bottle feeding, the sooner we can go home! We got word today that his leucine levels are still going down and are quite close to where we need them to be. WOOHOO! His body is doing its job and fighting these amino acids!
Evan is responding well to sounds and is gazing at his mommy and daddy while being held or fed. He really likes all kinds of music and stops what he is doing to take it in when he hears music of just about any kind. Daddy figured this out when the bagpipers were playing outside and Evan stopped sucking on his paci and turned his head toward the window from which the sound was coming. These are all good signs that the amino acids have hopefully not caused any neurological damage. We had a few vistors from our military family today. We couldn't be getting more support from the squadron! Thank you so much to our 512th family for being here for us! And thank you to our 41st family (from Moody) for the beautiful flowers! It's so great to know that you are thinking about and praying for us. Once a part of our rescue family, always a part of our rescue family! :) Love you all!
Evan was unhooked today! They took off his EKG monitor and his pulse monitor. They also removed his oxygen. He is now only attached with his feeding tube and that only runs every two hours! His feeding tube has now been pulled back from his intestines and is back in his stomach. We are feeding him every two hours by bottle and whatever he doesn't take by bottle is fed through his feeding tube in a 30 minute bolus. Feeding this way essentially mimics a natural digestive process and gives him a chance to get hungry. He is doing okay and has taken at least a little bit at each feeding by bottle. Hopefully we make more headway with the bottle feeding tomorrow. The sooner we are on only bottle feeding, the sooner we can go home! We got word today that his leucine levels are still going down and are quite close to where we need them to be. WOOHOO! His body is doing its job and fighting these amino acids! 
Evan is responding well to sounds and is gazing at his mommy and daddy while being held or fed. He really likes all kinds of music and stops what he is doing to take it in when he hears music of just about any kind. Daddy figured this out when the bagpipers were playing outside and Evan stopped sucking on his paci and turned his head toward the window from which the sound was coming. These are all good signs that the amino acids have hopefully not caused any neurological damage. We had a few vistors from our military family today. We couldn't be getting more support from the squadron! Thank you so much to our 512th family for being here for us! And thank you to our 41st family (from Moody) for the beautiful flowers! It's so great to know that you are thinking about and praying for us. Once a part of our rescue family, always a part of our rescue family! :) Love you all! 
Oh Teddi, I am crying! Wonderful news! I remember the day they unhooked Jaxon. Best day of my life! I'm sure today was the same for you! He is such a beautiful baby! Look at those pretty eyes!:)
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