Waiting....

We had an appoitment last Monday with Evan's geneticist, Dr. H.  He said Evan looks fantastic, but his numbers are still high. We are decreasing his protein intake even more.  He is doing well, though.  We also asked Dr. H to contact Stanford for us and to get the referral going for a liver transplant pre-evaulation. He emailed yesterday and said he contacted Stanford and we may be getting a call from their transplant coordinator.  We are nervous and excited all at the same time! We are sure this is the way we want to go, but don't really know what is going to happen. And we know the waiting is going to be difficult once Evan is placed on the list. Either way...we feel this is right for us and for Evan!